Title: On Privacy and Access: Examining Constraints on Information Flows for Precision Health
This event is hosted as part of the seminar series featuring leaders in precision medicine from across the nation. Co-presented by the Center for Precision Medicine and Genomics, the Columbia Precision Medicine Initiative, and the Precision Medicine Resource of the Irving Institute for Clinical and Translational Research. This event is supported in part by a gift from Pfizer to Columbia.
Speaker: Jennifer K. Wagner, J.D., Ph.D.
Assistant Professor of Law, Policy, and Engineering and Anthropology, Penn State University
Description: In recent years, there has been increased interest in exploring traceback strategies to provide at-risk relatives of individuals previously diagnosed with ovarian cancer an opportunity to learn of their genetic risk information through cascade screening. This seminar will provide an overview of legal research—conducted as part of the Feasibility and Assessment of a Cascade Traceback Screening (FACTS) multi-site study funded by the National Cancer Institute—that examined whether the Public Health Exception to the HIPAA Privacy Rule might facilitate precision public health efforts to communicate directly with at-risk relatives. By better understanding current legal and ethical constraints on information flows for precision health, we might be better equipped to design innovative policy approaches to advance the human right to health, science, and privacy…together.
Location: Zoom and in-person. Please register to receive the Zoom information for the event.
